Stay up to date with notifications from The Independent

Notifications can be managed in browser preferences.

Pete Frates death: Man who inspired ice bucket challenge dies after ALS battle, aged 34

'Pete never complained about his illness. Instead, he saw it as an opportunity to give hope to other patients and their families', a statement says

Clark Mindock
New York
Monday 09 December 2019 20:31 GMT
Comments
Pete Frates dies at 34, five years after he inspired the viral ice bucket challenge

Your support helps us to tell the story

From reproductive rights to climate change to Big Tech, The Independent is on the ground when the story is developing. Whether it's investigating the financials of Elon Musk's pro-Trump PAC or producing our latest documentary, 'The A Word', which shines a light on the American women fighting for reproductive rights, we know how important it is to parse out the facts from the messaging.

At such a critical moment in US history, we need reporters on the ground. Your donation allows us to keep sending journalists to speak to both sides of the story.

The Independent is trusted by Americans across the entire political spectrum. And unlike many other quality news outlets, we choose not to lock Americans out of our reporting and analysis with paywalls. We believe quality journalism should be available to everyone, paid for by those who can afford it.

Your support makes all the difference.

Peter Frates, the man who inspired the viral Ice Bucket Challenge to raise money to find a cure for amyotrophic lateral sclerosis (ALS) has died.

Frates, an all-star athlete in high school who later captained the his Boston College baseball team, was 34 at the time of his death, five years after the viral challenge inspired people across the world to raise awareness around the deadly disease.

"Peter Frates. A husband to Julie, a father to Lucy, a son to John and Nancy, a brother to Andrew and Jennifer, Pete passed away surrounded by his loving family, peacefully at age 34, after a heroic battle with ALS," said a statement from the family on Monday. "Pete was an inspiration ot so many people around the world who drew strength from his courage and resiliency."

Frates was diagnosed in 2012 with ALS, a disease also known as Lou Gehrig's disease. There is no known cure for the disease, which weakens the body's muscles and imparis phsyical functioning.

His disease inspired him to help spark the Ice Bucket Challenge in 2014, alongside Pat Quinn. The challenge, which involved individuals filming themselves pouring a bucket of ice water over their heads, led to approximately 17 million people around the world getting involved. In addition to raising awareness with the virality of the videos, the challenge raised more than $220 million for research to try and cure the disease.

"Pete never complained about his illness. Instead, he saw it as an opportunity to give hope to other patients and their families," the family said in a statement. "In his lifetime, he was determined to change the trajectory of a disease that had no treatment or cure."

The family has encuoraged donations in his memory be made to petefrates.com/donate.

Join our commenting forum

Join thought-provoking conversations, follow other Independent readers and see their replies

Comments

Thank you for registering

Please refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged in