Mother left not knowing why son, 14, died battles social media companies for answers

Mother of Jools Sweeney says she has been forced to apply for an expensive court order to gain access to her child's online data

Ellen Roome, 48, said she found the lifeless body of her son Jools Sweeney, 14, in his room on 13 April 2022 (Ellen Roome)

A bereaved mother searching for answers over her 14-year-old son's death is demanding social media companies be forced to allow parents to access their children’s online data.

Ellen Roome found the body of her son Jools Sweeney in his room on 13 April 2022, having spoken with him on the phone earlier in the evening when he told her he had been playing football with his friends and said his last words to her: “Love you.”

The 48-year-old, from Cheltenham, said she and Jools’s father Matt Sweeney left the inquest into their son’s death with no explanation of what happened, with the coroner not ruling Jools died by suicide because she said they could not prove he was in a “suicidal mood”.

As she was not aware Jools had been enduring any mental health struggles or facing other issues like bullying in the offline world, Ms Roome believes he could have taken part in a “sinister” online challenge that went devastatingly wrong. She says the only way she can access his social media data to find out if this was the case is by raising tens of thousands of pounds to apply for a court order.

Speaking to The Independent, Ms Roome said: “I want to know why my normal 14-year-old child decided to kill himself ... It should be my human right to know why my child isn’t here.”

Describing her treatment as a bereaved parent at the hands of tech companies as “inhumane”, she said: “Why the hell won’t they give me my child’s data? ... These social media companies have a duty to protect our children and what they are seeing and also to release data.”

Ellen Roome (centre) says she and Jools’s father Matt Sweeney (left) left the inquest into their son Jools’s (right) death with no explanation of what happened (Ellen Roome)

Ms Roome said she has the login details to access some of Jools’ social media accounts but not his search history, which she hopes might shed light on the circumstances surrounding his death. The coroner’s report concluded that police confirmed there was no third-party involvement nor suicide note found, adding that Jools’s family could not explain why he might have wanted to kill himself.

However, she said she does know that Jools enjoyed taking part in online challenges, albeit lighthearted ones. Only after her son died did she find out about dangerous challenges like “the choking challenge”, sparking fears he may have attempted one.

Ms Roome said the only way she could now access her son’s search history is to apply to the Attorney General’s Office to grant an application to the High Court for a new inquest into his death, with the new Online Safety Act granting coroners more powers to compel technology companies to provide information.

Ellen Roome described her only child Jools as ‘bright, loving, kind’ (Ellen Roome)

Justice Secretary Alex Chalk, who was Ms Roome’s MP in Cheltenham until parliament was dissolved for the upcoming general election, said: “I have written to the Attorney General to ask her to apply to the Court of Appeal for a fresh inquest. That way, these new powers can be used to get Jools’s parents the answers they are clearly entitled to.

“This is a truly devastating case, which has rocked our community in Cheltenham. My heart continues to go out to Jools’s parents.”

Jools’s family estimate the process will cost them at least £80,000 and they have set up a GoFundMe page to raise the funds.

Ms Roome said it is unclear why neither Gloucestershire Coroner nor Gloucestershire Police requested all of Jools’ social media search history from the tech companies when he died – and she fears it could now have been deleted. The force said it was limited by legislation, while the coroner declined The Independent’s request for comment.

Ellen Roome (pictured with her son Jools, centre, and his father, Matt Sweeney, right) says she does not ‘want anyone else to go through the horrific pain of losing a child’ (Ellen Roome)

She is demanding a change in the law to require tech companies to preserve children’s data if they die, on top of her joining the calls for legislation granting parents the right to access their children's social media accounts. She set up a petition urging the latter earlier this year, which hit 126,033 signatures – however, it was closed early due to the general election.

Ms Roome, who is a member of the Bereaved Parents for Online Safety group, said: “When you’ve lost a child, you don’t want anyone else to go through the horrific pain of losing a child – it is so unbearably painful.”

Ellen Roome is calling for legislation granting parents the right to access their children’s social media accounts after the death of her son Jools (Ellen Roome)

A spokesperson for Meta, the company that owns Instagram, said: “We are in touch directly with Ms Roome and will cooperate fully with any law enforcement investigation, including responding to any data requests.”

TikTok said it met with Ms Roome last month to explain to her that it no longer has Jools’s search history because the law requires certain companies to delete people’s personal data unless it is needed for running a business. The company said a valid request from law enforcement is among the exceptions to this legal requirement, but the police did not contact it until 2024, when his TikTok information was no longer available.

The Independent understands Snapchat is in contact with Ms Roome. The company said: “We have extra protections for under 18s and offer parental tools so parents can see who their teens are communicating with and report any concerns. We support the aims of the Online Safety Act and are able to provide parents with access to data, once we have followed legal steps to verify their identification.”

A spokesperson for Gloucestershire Police said: “As part of [an investigation into the cause of his death,] Jools’ phone was given to police and a review of the contents took place, as well as the manual review of a TikTok account. Nothing was found as part of these searches to provide any answers.

“Police are limited in what lines of enquiry can be taken to access private social media accounts hosted by private companies due to legislation, which states that you have to be proving or disproving an indictable offence, which is not applicable in this case and therefore there was no legal basis to apply for a production order.

“We know this sadly doesn’t help Jools’ family get the answers they are searching for, and we continue to support them with their own application for access to his social media accounts.”

You can speak to the Samaritans in confidence on 116 123 (UK and ROI), or email jo@samaritans.org. If you are in another country, you can visit www.befrienders.org to find a helpline near you.