Stay up to date with notifications from The Independent

Notifications can be managed in browser preferences.

Charlie Gard case: Judge to order child moved to hospice if agreement over final days cannot be reached

Parents have until 12pm on Thursday to agree with doctors on how 11-month-old should be cared for at the end

Jon Sharman
Wednesday 26 July 2017 17:33 BST
Comments
Charlie's parents have tried to assemble a volunteer medical team to provide hospice care
Charlie's parents have tried to assemble a volunteer medical team to provide hospice care (PA)

Your support helps us to tell the story

From reproductive rights to climate change to Big Tech, The Independent is on the ground when the story is developing. Whether it's investigating the financials of Elon Musk's pro-Trump PAC or producing our latest documentary, 'The A Word', which shines a light on the American women fighting for reproductive rights, we know how important it is to parse out the facts from the messaging.

At such a critical moment in US history, we need reporters on the ground. Your donation allows us to keep sending journalists to speak to both sides of the story.

The Independent is trusted by Americans across the entire political spectrum. And unlike many other quality news outlets, we choose not to lock Americans out of our reporting and analysis with paywalls. We believe quality journalism should be available to everyone, paid for by those who can afford it.

Your support makes all the difference.

Charlie Gard’s parents have been given until 12pm on Thursday to agree a plan for his final days.

If they cannot agree with Great Ormond Street (GOSH) medics on how the 11-month-old should be cared for before his death, the judge in the case will order him moved to a hospice and his ventilator removed.

Mr Justice Francis reportedly held a private discussion with Charlie’s mother, Connie Yates, late on Wednesday, as the tragic case neared its conclusion.

Both Charlie’s parents and his doctors have agreed he should move to a hospice, the High Court heard. But they disagreed over the detail of care plans.

Ms Yates, and Charlie’s father Chris Gard, had initially wanted their son to spend his last days at home with them, but GOSH opposed the move due to the complexity of his life-support system.

Ms Yates walked out of what could be the final court hearing in Charlie’s case on Wednesday, after the judge said a decision had to be made.

She yelled: “I hope you are happy with yourselves.”

Grant Armstrong, who led Charlie’s parents’ legal team, said the couple wanted to privately fund care at a hospice where Charlie could continue to receive life support for days before being allowed to die.

He said a doctor was ready to help, and several Great Ormond Street nurses had volunteered their services.

Great Ormond Street bosses said they were not satisfied that a properly qualified specialist would be in control under Charlie’s parents’ plan.

A lawyer in the couple’s legal team said discussions about mounting an appeal against Mr Justice Francis’s decision not to allow more time were taking place.

A family friend posted a statement on Facebook saying: “The reality is Charlie is very stable, not in pain and rarely needs a doctor. It is therefore difficult to understand why Charlie could not die at home.

“All he needs is a ventilator which pumps room air into his lungs. It is extraordinarily sad that there’s been so much fuss about him dying at home.

“Connie and Chris have conceded a hospice but it was not their first choice. They will be devastated they have not been granted their final wishes as parents.”

Additional reporting by agencies

Join our commenting forum

Join thought-provoking conversations, follow other Independent readers and see their replies

Comments

Thank you for registering

Please refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged in