Stay up to date with notifications from The Independent

Notifications can be managed in browser preferences.

Julian Baggini: It's better to do when you're going to die in order to focus on what really matters

 

Julian Baggini
Tuesday 20 November 2012 01:01 GMT
Comments

Your support helps us to tell the story

From reproductive rights to climate change to Big Tech, The Independent is on the ground when the story is developing. Whether it's investigating the financials of Elon Musk's pro-Trump PAC or producing our latest documentary, 'The A Word', which shines a light on the American women fighting for reproductive rights, we know how important it is to parse out the facts from the messaging.

At such a critical moment in US history, we need reporters on the ground. Your donation allows us to keep sending journalists to speak to both sides of the story.

The Independent is trusted by Americans across the entire political spectrum. And unlike many other quality news outlets, we choose not to lock Americans out of our reporting and analysis with paywalls. We believe quality journalism should be available to everyone, paid for by those who can afford it.

Your support makes all the difference.

If someone has a terminal condition and the doctor knows how long she has left to live, does the patient have the right to be told? Virtually everyone thinks she does. So why should it be different if that terminal condition is life itself?

One of the most serious concerns is more pragmatic than principled: the worry that insurance companies will refuse to insure those who have drawn the genetic short straw.

This is a real problem, but it’s not a reason to deny people tests that already exists to determine risks of death from some heritable conditions, and nor is it a reason to deny people a more general lifespan test. It is simply a reason for regulating insurance so that the unlucky aren’t left behind.

The trickier question is not political but personal: would it do us any good to take the test? I don’t see why not, as long as the result is clearly understood to be based on probabilities not clairvoyance. So discovering that your body won’t give up of its own accord until your eighty is not a reason to start counting your chickens, but merely a cause for contingency planning, should nothing else get you in the meantime.

If the wick of life is closer to burning out, better you know and start focusing on what really matters before it’s too late. Yes, we should probably all do that anyway. But we would all benefit from a stark reminder that life is short is needed, and it’s better is that comes earlier from a test kit than later from an all-too late diagnosis of an illness that has already started to do its worst.

Julian Baggini’s latest book is Ethics: The Big Questions (Quercus)

Join our commenting forum

Join thought-provoking conversations, follow other Independent readers and see their replies

Comments

Thank you for registering

Please refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged in